The In Between Time

I’m not doing chemo anymore, but I’ve not started radiation either. I’m in an awkward “in between time” that I maybe should be enjoying more than I am.

This past week, I had my appointment for a radiation simulation to get me ready. I am going to be doing something called deep inspiration breathing hold (DIBH) which basically means that I take a big breath and hold it while I get radiation shot into me. Taking a deep breath will move my heart away from my chest, so when they shoot the radiation into my chest, it won’t affect my heart. It’s sort of a newish thing, and since I am young (LOL), it’s a good option for me because I need my heart to be in tippy top shape and apparently younger folk can hold their breath longer than the older patients.

I had to practice to get to 30 seconds, so I don’t know how great that is.

You can read more about it here, if you’re interested.

During the simulation, I had to wear these glasses that let me see the computer screen the tech was working with. I could see my breathing and when I had to hold it and the countdown to when I could let my breath out and so on.

The breathing thing is sort of like a snorkel that goes in my mouth so my breathing can be recorded by the computer. They also put a clip over my nose so I can’t cheat.

They did a couple scans, made me a “cradle” that I will go in each treatment (so I am in the same position each time), and gave me 3 small dot tattoos so they can line me up with the machine.

I go back on November 26 for my first appointment, although I won’t get radiation until November 27. My first appointment is for “films” so they can take some pictures to make sure the area for radiation is correct and all lined up.

While I wait, I’m supposed to be gaining more strength and recuperating from all the chemo that has been pumped in my body. Resting.

I’m not resting, though. If anything, I am probably trying to cram in way more than I should. It’s the in between, you know. The reprieve from any treatment. I’m trying to finish a grad class toward my PhD (I should be writing a paper right now, but here I am). I’m also heading to the NCTE and ALAN conferences at the end of this week for a long weekend to present four times (two round-tables and two panels). Then there is work. And our personal life. And our kids’ personal lives.

People keep telling me to rest–to let myself “heal.” I honestly don’t know how to do that. There are things to be done. People to care for. Meetings to have. Kids to advocate for. Books to read. Papers to write. Stuff to grade.

Part of me wishes we could just get started already on this radiation thing. I have to have 30 rounds, and right now my “end date” is in January. I just want to be done.

Another part of me is sick of all this cancer treatment stuff and would be happy to push it off indefinitely. I’m sick of appointments and side-effects and the sucking up of my time that could be spent elsewhere.

I have only worked one 5-day week since school started. It’s beginning to frustrate me. And my next 5-day week will be the week I start radiation.

Did I mention a side-effect of radiation is fatigue?

Maybe I did. But a side-effect of chemo is chemo brain and that has not gone away yet.

I know I am lucky. I know I am fortunate. I also know that we have struggles.

Please pray for my energy levels as I fly out to Houston later this week for an intense weekend of professional development. Pray for my Charlie as he continues to navigate some pretty serious issues. Pray for Alice and Eddie to continue their positive attitudes. Pray for Cortney as he is about to solo parent for a long weekend (not that he doesn’t have tons of practice from this summer, but it’s draining).

And then look at this picture of Alice teaching her “Honey Pooh” to play with puzzles.

Thank you for being there for us.

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About Katie

Just a small town girl...wait no. That is a Journey song. Katie Sluiter is a small town girl, but she is far from living in a lonely world. She is a middle school English teacher, writer, mother, and wife. Life has thrown her a fair share of challenges, but her belief is that writing through them makes her stronger.

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