Wigs and Ports and Another School Year Over

The past week was a blur of preparations and endings.

It all started with me not having to go to work, but the boys still having school for the week. Monday Alice had her first dentist appointment ever. She was brave, but hated the water squirter thing because it was “too cold, mamacita.” And it turns out she has 3 cavities. Her brothers have had zero, so I guess she’s making up for it? Ugg. Cortney gets to take her for her filings next week.

Cortney and I also had our “education meeting” for my chemotherapy treatment this week. We got the down low on all the drugs they will be pumping into my body, prescriptions for all the things to make me feel better after they pump me with those drugs, and a tour of the facility where I will be receiving said drugs.

For my Big Four rounds of chemo, they will be pushing Adriamycin (which will turn my pee red–fun!) and Cytoxan. This will take me about four hours every other week. And they can do it that frequently because I also get a fun body injector thingy of Neulasta to help stimulate the growth of healthy white blood cells in my bone marrow. All this stuff is going to make me very fatigued and nauseated, so I have scripts for Compazine and Zofran AND Ativan to fight anxiety and help me sleep. Basically I’m going to be Drugs Walking for the next eight weeks.

Oh, they also gave me a script for a fun little numbing lotion to put over my port an hour before I go in so I don’t have to feel needle poked every time.

So then in August, when I start my weekly rounds of chemo, that will be just one drug: Taxol which takes only an hour to push in. So weekly and shorter starting in August.

Of course because they are going to pump me full of all the drugs there ever were, they want to make sure they don’t kill me with those drugs. Since, you know, keeping me not dead is the point of the drugs. Therefore they need a baseline heart echo, and then other ones as we go along with lab work.

The weeks I don’t have chemo, then, they will be poking me and looking at my blood and hear to make sure they aren’t doing more harm than good.

I also had an hour-long baseline heart echo this week.

OH! Also, my doc gave me a prescription for a wig! So I took one of my best friends and picked out a wig this week. This is what it looks like on the foam head we named Felicia:

This is what it looks like on me (yes, I am wearing a wig in this photo):

I’m super happy with it! Plus it was way more fun to pick out than I thought it would be. We laughed and laughed and talked about keeping the wig out of the range of extreme heat because it would frizzle up.

I also made sure to spend an hour and a half getting pampered and not talking about cancer or chemo or radiation at all. I had a gift certificate for a mani/pedi to cash in from Christmas, and since I can’t get them during treatment, I thought I should enjoy it now.

Friday was the boys’ last day of school. It was also the day my port went in. I really struggled with how their last day of school didn’t end up very special because mom felt tired and sore after having a port sewn under her collarbone.

Both brought how glowing report cards though. Eddie also brought home the LOL Award (voted on by his classmates; basically Class Clown) and no one was surprised. He loved it and was so proud. He was also sad to leave 3rd grade because he loved his teacher this year, and he has two friends who won’t be back next year. One has been in his class every year since Kindergarten and the other is his comic book making buddy. Fourth grade will definitely be different without those pals.

Charlie brought home a GIANT marble that he earned with his better behavior and ability to talk with the before/after school program coordinator whom he really bonded with this year. He was so proud to show it to me, and told me he was sad to see Kindergarten go, but he knew he would still be in the same hallway next year when he’s in first grade.

I didn’t take any last day of school photos. I wasn’t there to take them out to lunch. I didn’t pick them up. I was on the couch sleeping when they got home, and I fell right back to sleep once they had their lunch.

And you know what, life moved on. They were over it by dinner.

Tonight at dinner we reviewed what is coming up this week (last baseball games and chemo) and decided that tomorrow we would go to the library, get Charlie his own library card, and then get donuts.

I’m anxious about everything starting this week. Today has been rough. I expect this week to swing from feeling like a fricking cancer kicking warrior to feeling like a ball of “I can’t do it” mush.

3 days until treatment starts.

Related Posts Plugin for WordPress, Blogger...
About Katie

Just a small town girl...wait no. That is a Journey song. Katie Sluiter is a small town girl, but she is far from living in a lonely world. She is a middle school English teacher, writer, mother, and wife. Life has thrown her a fair share of challenges, but her belief is that writing through them makes her stronger.

Comments

  1. Katie, you are going to be doing great. I think its so wonderful how you include your kids in all this. We will be praying for you

  2. (((((((((((((()))))))))))))) It sucks when the way we want our kids days to go don’t go that way. Thankfully they are resilient. You are resilient. And you got this!

Speak Your Mind

*